I haven't weighed in this week. I forgot on Sunday and then we left town. We'll see where I'm at next Monday.
We're back from the last specialist appointment for a while in the big city. The neurologist didn't have much to tell us. First, he wanted Finn checked for the same genetic syndromes as she's already being tested for. That's not overly encouraging since we've now had 3 doctors think these could be an option for her. But really, it just sounds like Finny has some brain damage from her time in my womb being fed from my not so healthy placenta. While her MRI was read as normal, there are parts of her brain that they thought might be a little small. So no lesions, but perhaps not as developed as it could/should be. So officially? She has a global developmental delay. Pretty broad, but really, what we expected.
What does that mean for us? Great question. He didn't give us much in terms of what to look for in the future. He said that she'll continue to develop according to her own curve and that would pose "significant" issues once she starts school. It means more physiotherapy, more occupational therapy, more speech therapy. Basically, keep doing what we're doing.
My gut tells me that she will have a hard time in school, but finish high school and move on to a fairly normal life (please God please!!!). So that's what we'll hope for as we work on not allowing her to be limited or put in a box. I think she's pretty bright and is just having a hard time getting her body to do what it needs to do. Or at least I hope!
Guess time will tell.