Tuesday, April 21, 2009

News in the mail

Well, it's official. Finleigh doesn't have any scary genetic disorders. You can find out more from this post if you don't know that history. And here's the story about when she was born.

We received a letter in the mail today telling us that Finn's genetic tests came back negative or in the normal range. Most likely diagnosis? Developmental Delay of undetermined etiology.

If you ask me? The whole probable deprivation of oxygen and Finn almost dying just before she was born is probably the reason for the delay or...uhm...etiology. The damage has been done now and so we now have to forge ahead.

So this is good news, right? Yup. It is. Really, this is the best of all scenarios. But I can't help feeling a little melancholy about the whole thing. And slightly bloated from that bowl or ice cream I just scarfed down.

Developmental delay is really a very broad term that means we don't know what's wrong and we can't predict the future so we'll stick with this for now. When she's older, we'll test her IQ and go from there. Or at least that's what it seems like to me.

What comes next? I'm not sure cuz Finn's pediatrician is on maternity leave until July. But I'm assuming that we'll continue to keep her in speech therapy as long as they'll keep us and hope and pray that she begins to catch up...even a little bit...with her peers. Maybe more occupational therapy? Possibly check out a naturopath? Keep loving her to bits.

I don't mean to sound ungrateful because this news really was such a relief. But the reality of this whole thing keeps sinking in and while normal doesn't matter so much to me...a mom still wants the best for her kids. I know she's come a long way in a year, but she still has so far to go.

Did you enjoy the preview of the new kitchen? It's functional and just needs a few finishing touches (like a back splash) which won't be done for a week or two, so no pictures yet. But we're moved in and happy with it. And as you can tell, Finleigh is too.


  1. the kitchen looks lovely.

    And I totally understand about wanting to know exactly what you are dealing with... we can't seem to get an actual diagnosis for Aiden either.

    Finleigh is lovely and these pictures of her are super cute :)

  2. I concur, simply too cute for words.

    And I think my sister has those same cupboards.

  3. Thanks for the wonderful update! I am loving the kitchen too.

  4. Beautiful girl and great cupboards!

    Thanks for the update Mander.

  5. Cute pictures of Fin.(and nice kitchen too) That is great news that the test were normal. I went to the Naturapath today, and highly recommend her.

  6. I love the snippets of the kitchen that we're seeing in the background of these pics and in the videos you posted too. Can't wait to see more.
    I think I can see how this is good news. I really have no idea what I'm talking about - but I did work with a developmentally delayed boy when I was in Japan for those few years and from what I've seen of him - as more time goes by, they're seeing less and less of a delay between him and his "peers". It was most noticeable in kindergarten and grade 1, but then every year after that, things got better and better, and now in middle school, he pretty much fits right in.
    I know, of course, that everyone's experiences are different, but just thought I'd share that with you.
    Finnleigh is so beautiful! I can't believe she's climbing up on the table and back down - what a monkey!! Wish we could get together and let our kids play, I think they'd have a blast.
    Have a good day, my friend!

  7. Cute pics of Finleigh and the kitchen looks nice too.