All children with cerebral palsy have damage to the area of the brain that controls muscle tone. As a result, they may have increased muscle tone, reduced muscle tone, or a combination of the two (fluctuating tone). Which parts of their bodies are affected by the abnormal muscle tone depends upon where the brain damage occurs.
Just the other day, her physiotherapist told me she had fluctuating muscle tone. Interesting.
Cerebral palsy is a term used to describe a group of chronic conditions affecting body movements and muscle coordination. It is caused by damage to one or more specific areas of the brain, usually occurring during fetal development, or during infancy. It can also occur before, during or shortly following birth.
It can range from severe to barely noticeable. Finleigh would obviously be on the more mild side.
It doesn't change anything.
Or does it?
After we got home, I found myself treating her a little more gently than normal. I had to stop myself because I don't think that's the way to go. Just because we might have a name doesn't change who she is or what she's doing right now. A name, 2 little words, should not change anything.
Part of me would love to FINALLY have a name. A way to describe things to people. A classification.
Part of me does not want my child to be labeled and would hate for a name to her condition to hold her back as she grows up.
Part of me does not want to have a child with CP.
Part of me wants to embrace it, move on and do everything we can to give her as normal and productive life as possible.
Part of me just wants to go to bed. Or eat excessive amounts of chocolate. Or drink lots of wine.
Part of me is barely phased at all.
I have a lot of parts, I guess.
So, there you have it folks...the latest in the Finny saga.
We won't know anything definite for months and months yet and in the meantime, we'll continue cheering her on as she continues to develop and grow.