Monday, June 17, 2013


My heart is in my throat right now. I just got cancelled on again.

I know its not the case, but it feels like no one wants to be around us. Even people who are being paid to help us are cancelling on us. Last minute. I don't think I can take it much longer.

After a year of trying to get respite, we finally have an official worker and a few paid for hours from the government. She was supposed to come over for the first time on Sunday, but she cancelled last minute (like less than two hours before, even though we're required to give at least 24 hours notice without losing hours). She had a family emergency, but still.

The girl we have coming to help Finleigh with behaviour (who we're paying for out of our own pocket)  just called to cancel our appointment for this afternoon. Two for two this week.

But the kicker. Another SMS family that we were planning to see this weekend when we go down to the big city for a specialist appointment, has decided not to get together with us. We had a very difficult time communicating online (it was as if we spoke two different languages) and she just finally told me that they'd changed their plans and wouldn't be meeting us.

I wouldn't care so much, except that SMS families are rare. I only know of 5 other families in my province. FIVE.

So that's that, I guess. I'll just sit here and feel sorry for myself.


But really. I could use some respite time. That would be nice.

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