Friday, January 11, 2008


I know, I know, 2 posts in one day. But, I hafta get this off my chest before I go and finish all the cookie dough that I hid in the freezer.

There's something wrong with my baby. I don't know what, but there's something that's undiagnosed. It's either genetic or neurological...I'm not sure which one and we're on waiting lists for both, but I want to know NOW!!!!! I have no idea how long it will take to get in to see them, it could be 6 months for all I know...and that's too long.

She's a beautiful, sweet natured, smiley baby. Nearly 11 months old and still not sitting on her own yet. Still doesn't make any consonant sounds. Can't clap her hands or wave bye-bye. Doesn't weight bare when you hold her up on her feet...though I guess she can bounce in the jolly jumper. She was a month premature, but that doesn't explain why she's at least 4 months behind and seemingly falling even further back. She is improving and developing, but its at a painfully slow rate and as I see children begin to walk who are about her age (both my boys were walking at around 11 months) I'm really beginning to worry. She does respond to her name, can play a little with toys, rolls over like a pro and smiles like there's no tomorrow, but that's about it. Add to that the tube feeding, the breathing, the bowels that can't decide if they should produce hard or watery stool, the swelling, the weird folds in her skin, her tongue sticking out a lot and the fact that the soft spot on the top of her head is still the size of a Toonie (yes, I'm Canadian) and I think you would agree that there is definitely something wrong. Something over riding everything that's causing these symptoms.

What to do? What to do? I'm thinking of trying a new pediatrician to see if she can make any sense of that for me? Right now, we're going to all these specialists who are only interested in the specific problem we're going to see them for.

This, for the record, sucks!

1 comment:

  1. Oh Amanda, my heart breaks for you. I can't imagine how stressful this must be for you. But just to encourage you a little- my Owen only STARTED sitting up at 11 months, began to crawl at 11 months, didn't walk until several months later, didn't start to talk AT ALL until at least 18 months old... and he's just fine now. I know it seems overwhelming right now and I really do wish I could make it all better! Finleigh is beautiful and she is connecting with you, she smiles at you and she IS developing...even if it is a little slowly,and that is HUGE!
    I would be discouraged too honey. I'm praying and just know that you are in my thoughts!